Showing posts with label sharing your story. Show all posts
Showing posts with label sharing your story. Show all posts

Friday, September 30, 2016

#RABlog Week Day 5: Great Blog Posts I Have Read This Week

Just One Voice,
Singing in the darkness,
All it takes is One Voice,
Singing so they hear what's on your mind,
And when you look around you'll find
There's more than
One Voice
 - Barry Manilow - 

When I was 16 years old, I was a huge (or in the words of Donald Trump, lol, YUGE!) Barry Manilow fan. His songs somehow had the power to make me smile and cry at the same time. There was so much truth and so much raw emotion in them, and a few, like Copacabana, even had a little mystery and humor mixed in.

In the same way, #RABlog Week is one of my favorite times of the year because it brings together a whole lot of different stories and perspectives from rheumatoid arthritis (RA) patients from around the world. We smile as we hear a story we relate to. We cry when we read of someone’s pain and struggles that are even more difficult than our own. We get some good advice from others who have been there and done that. We are inspired and encouraged, and occasionally, we even find a little humor. As writers, we begin as just One Voice, but then learn there are a whole lot more of us, and together, we sing a beautiful chorus.

With almost 40 registered bloggers and more than 50 entries (so far), I haven’t had a chance to read all of this year’s blogs, but I can share with you a few I have enjoyed, as well as some collective wisdom I found threaded through all of them.

Monday, September 26, 2016

#RABlog Week Day 1: A Wedding, a Kayak and a Diagnosis

"RA Does Not Have to Define You" - Linda W. Perkins

Today is Day 1 of #RABlog Week and the topic is "Starting Stories." I've told my story several times here on Spring Sight and I wondered how I might tell it differently this time.

While I would never consider the diagnosis of a chronic, painful and incurable illness like rheumatoid arthritis to be amusing, there comes a point in your life when you have to find a way to laugh at even the worst of circumstances. After all, it's been said that laughter is good medicine for the soul, and I tend to agree.

So for today's post, I have created a title that's a take-off on the old "A Priest, a Rabbi and a Minister" joke. Yes, my starting story could be best described as "A Wedding, a Kayak and a Diagnosis." And fortunately for me, I was reminded by a fellow RA blogger's post that I have already told this story once before, in a multimedia format that's much more interesting than just a written story.

So without further ado, may I present "A Wedding, a Kayak and a Diagnosis" as told by me, and produced by Health Central. Read, listen and enjoy (spoiler alert: it has a good ending)!

My Story: A Wedding, a Kayak and a Diagnosis (link)

Check back here during the week for more RA-related posts, and go to the #RABlog Week topics page to find posts by other RA bloggers!

#RABlog Week Day 1: A Wedding, a Kayak and a Diagnosis originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on FacebookPinterest, and Twitter

Many of Spring Sight's posts can also be found each week on Crystal Storms' #IntentionalTuesday,  Kelly Balarie's #RaRaLinkUp, Holly Barrett's Testimony Tuesday, Arabah Joy's Grace & Truth, Holley Gerth's Coffee for Your Heart, and Woman to Woman's Word Filled Wednesday. This week, I am also linking up with Jennifer Dukes Lee and Dawn at Journeys in Grace, as well as with Lori Schumaker.

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Tuesday, August 23, 2016

Don't Hide Your Light

“Men do not light a lamp and put it under a basket. They put it on a table so it gives light to all in the house. – Matthew 5:15 (NLT)

As I walked towards the recreation building, off to the side of the church, I noticed the sky. It had turned dark and I knew that it wouldn’t be long before it would open up and begin pouring buckets. There had been so much flooding in the area recently, and I knew that more storms might mean I wouldn’t get home. It didn’t matter, though. I needed to be there.

I entered the building, and an older lady greeted me with a smile. “Are you here to pray, or for the other meeting?” I told her I was there to pray, and she directed me to a table of women who already had their heads bowed.

I was new to the church and didn’t know what to expect. All I knew was that an hour beforehand, I had dropped my daughter off at her school bus stop, waited until she was on the bus safely, and then went home and sobbed. It was her first day of middle school, a day we had planned for all summer. Despite her nervousness, it was a day we were excited about. But it was not off to a good start.

Wednesday, February 3, 2016

I’m Not the Same as I Was, or Will Be

"You can make many plans, but the Lord's purpose will prevail." - Proverbs 19:21

This is the second article on rheumatoid disease (RD/RA/rheumatoid arthritis) written for Rheumatoid Awareness Day. It is centered on RD Fact #3: Rheumatoid disease manifests itself differently in each person and even in the same person over time.

As anyone with chronic illness will tell you, comparison is not a game you want to play.

I looked around the rheumatologist’s waiting room at the patients around me, sizing up the different situations and noting my reactions.

Young woman with a walker. How sad. I wonder if she had juvenile arthritis or if her disease is just that aggressive?

Middle-aged man with a cane. Hmmm…I wonder what his story is. Knee or hip?

Attractive lady in a wheelchair. Wow. She’s not that young, but not very old, either. Too young to be disabled, for sure.

Suited up business man. He looks just fine to me. Is he really a patient or is he a pharmaceutical rep? 

The fact is, with an illness like rheumatoid disease, we never know what the real story is with others. Looks can be deceiving. 

Even in my own life, I can look at my Facebook page and if you only looked at my photos, you would never know I had a chronic, disabling disease. They show my life’s joys, its triumphs, not the pain I may be experiencing that very same day.


Take my favorite wedding day photo, for example. I was pleasantly surprised to see that Health Central featured my RA story on its front page and used the picture I had sent them of me and my husband with our kayak paddles. There I am, smiling away, looking like I don’t have a care in the world! 



If you take the time to read my story, though, you’ll find that it wasn’t quite the fairytale it looks. The joints in my hands were so swollen that my husband almost couldn’t get the ring on my finger during the wedding ceremony! For days before and after, my feet hurt too bad to walk across the hardwood floor of my bedroom without slippers. And the fatigue was getting severe too, and cut our activities short on our weekend “mini-moon” trip just a short time after our wedding.

That was my life before diagnosis. It got worse before it got better, but once I finally agreed to treatment with a DMARD (disease modifying anti-rheumatic drug), life became good again. If you listen to the audio portion of my story, you’ll hear how I was thrilled to not get sick from the drugs (yay for success with Plaquenil!) and how I felt “great” after a few months of treatment and physical therapy for both my shoulder and knee. 

I can talk about my great trip to Canada last summer, which was indeed made possible by the successful treatment of my rheumatoid disease. I can even show you pictures of me hiking and kayaking! I was never so happy to be able to take that vacation with my husband. But did I mention the ice therapy on my knee every night and the pulley I brought with me to keep my shoulder recovery going? That I am still having issues with my shoulders (mostly the other one now) and that knee? And that my big toe joint hurt so bad on Christmas Day that my husband had to do 100% of the dinner cleanup because I couldn’t stand any longer and was downing anti-inflammatories and soaking my foot in Epsom salts?

I am always going to consider my current life (as it is today) “great” as compared to my life with untreated rheumatoid arthritis. Even with my occasional flares of fatigue and painful joints, there really is no comparison. I’m also grateful that my current state of disease activity is mild compared to that of some other people. But RA is a progressive disease and there is no cure. It’s not uncommon for a medication to work for a little while and then just stop working. The immune system is complicated. There is no such thing as a straight line of recovery when it comes to autoimmune diseases like RA. You take nothing for granted. Every day is different.


I don’t know what my life will look like in the future. I hope it is as good as it is today. Who knows, perhaps medical research will find a cure and I will find remission. But even if that never happens, or I get worse, I know I can trust that I am held in the palm of the One who will never let me go. I can trust that God is good and so are His plans for me. I can find joy, even on the painful days, if I look hard enough for it. I won’t assume my life is better or worse than others, remembering that looks can be deceiving. In that, I can find gratitude and peace. 

I am not the same as I was, nor will I be the same tomorrow. Just for today, I will be OK.

If you have a chronic illness, how much do you compare your situation to that of others? Do you linger in the past or fear the future, or can you rest in the present?

I'm Not the Same as I Was, or Will Be originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on FacebookPinterest, and Twitter

Many of Spring Sight's posts can also be found each week on Grace Esedeke's EncourageMe MondayCrystal Storms' #IntentionalTuesday,  Kelly Balarie's #RaRaLinkUp, Holly Barrett's Testimony Tuesday, Arabah Joy's Grace & Truth, Holley Gerth's Coffee for Your Heart,  and Woman to Woman's Word Filled Wednesday.


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Tuesday, July 28, 2015

Moving Mountains, One Day at a Time


“Truly I tell you, if you have faith as small as a mustard seed, you can say to this mountain, ‘Move from here to there,’ and it will move. Nothing will be impossible for you.” – Matthew 17:20

Have you ever had a dream that you knew God planted in your heart, but as time went on, you just didn’t see how in the world it was ever going to come to pass? Perhaps it was the dream of a career, sidetracked by a lack of education or lost opportunities. Or that of a happy marriage, dashed by divorce. Maybe it was a dream of motherhood, foiled by infertility.

I know what it is to question God when dreams get dashed. To ask, with tears in my eyes, “Why, God, why?” and “When, God, when?”

This is a story of learning to believe. In myself? No.

I’ve failed too many times when I counted on my own strength. 

Trying with all my might, gritting my teeth, doing all I could to be “good enough” didn’t work. I just couldn’t move that mountain. I couldn’t get pregnant. I was losing the marriage. My career was on shaky ground. Life as I imagined it just wasn’t happening. In addition to questioning God, I had to ask myself, “Is it circumstances, or is it me?” And just as I was about to give up, God stepped in.

I came to believe in a power greater than myself.

At my wits end, not knowing how to create any kind of life for myself, out of the mess I had made of it, I gave up. I had nowhere to turn to, except … UP.

I had read in the Bible that God granted wisdom to those who would seek it, and so I sought it with all my heart. I wanted – no, I needed – to know what the blind spot was in my life that was keeping me from the peace and joy I so desperately wanted to find.

With all of my circumstances whirling around me like a devastating tornado, I wasn’t in the mode of trusting anything or anyone. I came to realize I was propping myself up on a crutch that, while not the cause of the chaos in my life, certainly was contributing to it. Alcohol. Yes, the demon that had haunted my family for multiple generations back. Those three glasses of wine. The couple of beers. Not occasionally. No, now it was almost every night. It had become my daily companion, something to ease the pain. No more was it about having fun; instead it was about numbing those feelings of failure, of worthlessness … of hopelessness.

I don’t think it was any accident that at the same time I was asking God for wisdom, the same question came up over and over again in my Bible study booklet. “What is God leading you to do in order to join Him in what He is doing?” The answer that continually came to my mind was “Quit drinking.” But how? Business dinners, social happy hours, gourmet cooking … it seemed that most all of my activities involved drinking. Would I become a social pariah?  What would I do instead?

I turned my life and will over to the care of God.

It didn’t take too long for me to realize I was “sick and tired of being sick and tired.” Still trying to get pregnant, I tried to imagine life without alcohol for nine months or so and as hard as I tried, it wasn’t as easy as I thought it would be. Perhaps it was time to turn things over to something more powerful than myself. The day after a particularly bad hangover, at which time I swore I wasn’t going to drink again, I found myself back at happy hour. At 4 a.m. the next morning, I awoke to the stark reality. I have a real problem. And that evening, I walked into my first 12-step meeting. There I met people whose drinking had far surpassed mine, and whose life consequences showed it, but there was that one element of commonality: our lives had become unmanageable.

Many a friend didn’t think I was an alcoholic, and truthfully, from a physical standpoint, my doctor wouldn’t have considered me one either. But I knew that psychologically, I had become dependent. And I had also learned the hard way that there was no problem I had that a drink wouldn’t make worse. I had seen the path where alcohol had led others in my family, and I didn’t want to follow in their footsteps. I had also seen the dramatic turnaround in those who had traded in their dependence on booze for a complete dependence on God. I wanted what they had.

As I learned to trust, God moved the mountains.

There is a saying that time heals all wounds. What that saying doesn’t convey is how much time it takes. As of this writing, it’s been over 18 years since I took my last drink. This week, I will pick up a “chip” to celebrate that milestone. Looking back, I see how God has worked in my life. I can see how He was there to protect me and guide me into making that life-changing decision so many years ago, and I can see the mountains He has moved since that day. And as for my part, I see what I needed most was faith.

When I began to relax and accept God’s will for my life, a funny thing happened. I found the peace and joy I had been looking for. More than that, however, I found that the mountains I had been trying to move myself were moved in the most unexpected ways. Though I had struggled in the corporate world, I found success as an entrepreneur and consultant. While I never got pregnant, God gave me the gift of motherhood via adoption. My first marriage did in fact fail, but my new one – found only after seven hard years of single parenting – is everything I ever hoped for. And my lifelong dream of becoming a missionary, which I thought for sure all hope for was dashed by the “backslidden” life I had lived? As a priest at a 12-step retreat told me many years ago, “Don’t you see it? God has been qualifying you! Now you have a story to tell of His power.” 

In 18 years, I have learned the secret of a happy life: living life on life’s terms. We may not understand all of its ups and downs, twists and turns, and yet God does have a plan and it is good. What does it take for those mountains to be moved? Faith like a mustard seed, lived out one day at a time.

What is your dream? Can you see how it connects to what God is doing in the world? Is there anything you need to change in order to join Him? Just trust and obey, leaning on faith. You will get there … one day at a time.


Moving Mountains, One Day at a Time originally appeared on Spring Sight blog, by Linda W. Perkins.  Get even more encouragement by following me on FacebookPinterest, and Twitter.


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Today I am linking up with:

Intentionally Pursuing Intentional Tuesday   
purposefulfaith.com

Holly Barrett

Wednesday, May 6, 2015

What's Your Story? Why It Matters.

your story matters
“However, Jesus … said to him, ‘Go home to your friends, and tell them what great things the Lord has done for you, and how He has had compassion on you.’” –Mark 5:19 (NKJV)

We all have a story to tell, some even more than one. I know I do. And I know you do too. The question is, do you share it?

One of the online support groups I follow on Facebook runs a very simple ad on its pages. All it says is “What’s your story?” It invites group members to share their experiences with rheumatoid arthritis. At a 12-step meeting I attend, members are likewise encouraged to share their “hope, strength and experience” in dealing with their specific personal struggles. In church, I've heard people get up and give their “testimony” of how Jesus Christ changed their lives. In some venues, stories are shared frequently, while in others they are only shared now and then. But whenever and wherever, in whichever context they are shared, there is one thing they all have in common: every story is unique.

As I have had multiple requests for my story lately, I've had to give thought to the question of “why share?” In hearing the stories of others, the answer has become abundantly clear. Your purpose is to share what’s happened uniquely to you, because God knows there is someone out there who needs to hear your story. Someone else’s story won’t do. Only yours.

If you don’t believe me, just look at the track record of the best-selling book series Chicken Soup for the Soul: a collection of stories from ordinary people who have chosen to share something about their lives, which has gone on to inspire millions of readers. If you pick up one of the books, you’ll probably find yourself as I have, casually reading through the stories, thinking “Well, this is nice…” and then suddenly, you stumble across one that stops you dead in your tracks. “Wow! Her situation was just like mine!” And when you hear how everything worked out, suddenly you have hope. Or you’re inspired to do more. Or you now feel confident that you can put your situation in God’s hands and it will all be OK. You didn’t need all the stories in that book. You needed just that one.

The dilemma we often find ourselves in is that we don’t know which story we need to hear. We may need to hear one story at a particular point in our lives, whereas a different story is what we need at another time. That’s why one story is not enough. If your story isn't fully embraced now, keep telling it. There will come a time when, in the midst of all the other stories, your story will shine through to the soul of the one who needs it, right at that very moment.

Jesus, who many times chose to teach through stories (aka “parables”), knew this truth. In one Bible passage, He said “The kingdom of God is like…” and then used three different ways to describe it. He knew that one analogy wouldn't do it for everyone; that each of us “hear” from our own personal perspective and so we have different sources for inspiration or understanding. Likewise, as He went around healing the lives of those He touched, He would encourage the people He healed to share their stories with others. “Tell them what great things the Lord has done for you, and how He has had compassion on you,” Jesus said in Mark 5:19. His purpose was to bring glory to the Father, and He knew that the people’s personal experiences were the greatest testimony of God’s love for them.

My mother, who has been in acute care in the hospital for almost a month now, has many stories she could tell of God’s power in her life. Some she has shared publicly, while others – the more personal, private ones – she has shared with just a few. Two of her most powerful stories are related to her health. Over 30 years ago, with less than a 5% chance of survival, she battled lung cancer and not only survived, but went on to become a competitive ballroom dancer with just one lung. Her story as an "overcomer" has inspired many who needed to know that all things were possible with God.

Today, recently diagnosed with pulmonary fibrosis, which comes with an uncertain future, her story is different, but just as impactful. My mother’s message today is of the peace and joy she has found in Christ, despite her circumstances. She has truly learned what it means to “let go and let God.” She knows that this is one health battle that she may not in fact overcome physically, but her spirit is being renewed and refreshed every day by the power of the Holy Spirit, so much so that she can’t help but share her story with others – even the nurses attending to her. There in that hospital bed, she is making a difference.

As I said before, we all have a story to tell, some even more than one. I know I do. And I know you do too. The question once again is, do you share it?

No matter if you are still struggling or if you have claimed victory over a challenge in your life, God can use you to make a positive impact in someone’s life today. Pray about the stories of His power and presence in your life and how, or when, or with whom you can share them. If you feel inclined, please feel free to share them here!

What's Your Story? Why It Matters originally appeared on Spring Sight blog, by Linda W. Perkins.  Get even more encouragement by following me on FacebookPinterest, and Twitter.

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