Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

Tuesday, June 6, 2017

Time to Get Back on That Horse?

“I have the strength for everything through him who empowers me.”
Philippians 4:13 NABRE

We had just arrived at the dude ranch for our family reunion and were checking in when the desk clerk, a friendly woman with a broad smile and long blonde hair flowing out from under her bedazzled black cowboy hat, asked the inevitable question: “Are you interested in riding today?”

The next trail ride was in 45 minutes and, given that it was 3:00 in the afternoon on a hot summer day in west Texas, no one had signed up yet. There were plenty of spots open. Was I interested? Yes. Would I be able to do it? That was the question.

The last time I had ridden a horse was seven months before, and to call it a pleasant experience would have been a stretch. My left knee, one of the joints I’ve had trouble with since the onset of my rheumatoid arthritis (RA), was not happy. Truthfully, it felt as if it were being twisted right off my leg. No matter how hard I tried to get comfortable, I couldn’t, and I pretty much decided that perhaps my riding days were over.

While I remember the physical pain I was in during that trail ride, what sticks in my mind the most was the disappointment I felt. With the way my knee was hurting, I was not planning to ever ride again, which made me sad.

I had been around horses my entire life, from the time my daddy sat me up on top of “Kate,” the old mare at my grandfather’s farm, when I was about three. My uncle was a Texas rancher, married to a professional cowgirl, and when I was in high school in England, my sister and I spent a lot of time at the nearby stables where we learned to jump. Even though riding had been only an occasional pastime for me as an adult, it was still something I loved to do when I had a chance.

So here I was, at a decision point. Could I accept the ride seven months beforehand as my last time on horseback or should I try again? Would I take a chance and get back on a horse, or would I sit it out?

Wednesday, May 17, 2017

Giving Thanks for What I Don't Have

“Give thanks in all circumstances; for this is God’s will for you in Christ Jesus.”
I Thessalonians 5:18

“Keep an attitude of gratitude.” I’ve heard that phrase over and over again through the years. For me, it’s what I tell myself when I’m going through a hard time. It reminds me to find the little things to be thankful for, especially when the big things in my life are looming over me like a scary monster about to chew me up and spit me out.

An attitude of gratitude has gotten me through a lot in life. In every situation, from my divorce to my father’s death, I have tried to find the silver lining in the dark clouds. “Well, at least it’s amicable,” I mused about the breakup of my marriage; and “He’s no longer suffering” is what I said when my father passed after a two-year battle with cancer. This “silver lining” approach has become so ingrained in me that my closest friends know that every trial I tell them about will be followed up with the statement “but it could be worse…”

Yes, it could be worse, couldn’t it? It’s easy to sit on our pity pot when times are tough; and yet, when you step outside yourself, you find that even with your troubles, there is often someone else hurting a whole lot more. In the “old days” when I was growing up, parents would remind us of this, even if it were to just tell us to eat all the food on our plates. “Think about the starving children in Africa,” they would say. Suddenly we appreciated that we had food at all, even if it wasn’t our favorite dish.

I am reminded of this today because I find myself surrounded by friends and family members for whom it really is worse. While I sit here typing this blog, I am looking out the window at a beautiful sunny day, thinking fondly about the walk I took in the park with a friend this morning and the laughter we shared over coffee. Sure, I have multiple chronic illnesses and a torn rotator cuff that isn’t quite healed. It can be difficult to sleep and sometimes hurts to get dressed in the morning. I don’t like that.

But then I think about a friend whose child is struggling with depression, to the point of suicidal thoughts. Another friend is sitting at the hospital waiting for the doctor to give him a prognosis on his son suffering from traumatic brain injury due to an accident. One family member’s RA treatment isn’t working and she is facing knee replacement, while another family member is preparing for cancer surgery and chemo.

Having a thankful heart, however, is not the same as giving thanks. Giving thanks is an active verb, not a passive condition. God wants our gratitude, but he also wants action behind it.

Friday, April 28, 2017

13 Reasons Why {Not}

"So don’t worry, because I am with you. Don’t be afraid, because I am your God. I will make you strong and will help you. I will support you with my right hand that saves you." - Isaiah 41:10

It was an ordinary Friday night. We had just gone to dinner as a family and were settling down in front of the TV, talking about what to watch.

"You should watch 13 Reasons Why, Mom," my daughter said. "It's really good!"

Curious about the show she had mentioned once before, I looked online to see if there was more information on it before making a decision. Why yes, there was. A whole lot of positive reviews for its direction and creativity, and a whole lot of talk from parents and psychologists expressing concern over the graphic content and messaging that was making suicide hotlines light up like Christmas trees.

If you don't have a tween or teen, you might not have heard of the latest show on Netflix, which is based on a novel in which a teenage girl commits suicide. The "13 reasons why" refer to 13 messages she left for individuals whose actions played a part in her decision to take her life.

I will be the first to tell you I haven't seen the show and I don't plan to. I will also say that the same night I learned about it, I took steps to adjust the parental controls on my TV and my daughter's cell phone.

There are some who think we as parents should watch the show "to understand what our teens face" in today's world. By all means, if you grew up in an untarnished, sheltered environment, perhaps this is the eye opener you need. Drinking, drugs, bullying and date rape...it's all there, graphically depicted (apparently).

But as for me, I haven't always lived in the light. I have touched that darkness - the despair, the depression, the shame, the hopelessness - and was almost swallowed up by it. I'm not going back. And I'm certainly not taking my 12-year-old back with me.

When I began writing this blog almost three years ago, it was to give people hope. Living with chronic illness is not easy. Depression is common, and suicide is not unheard of. When the pain feels like it will never end, when your life feels over, it is easy to give up. There are those who do. But I'm here to tell you - DON'T. 

I spent the first few months of this year in daily, intense pain from chronic migraines. If you have ever had a true migraine, you will know what I mean when I say it's not just a headache. At one point, during a trip to New York, I rocked back and forth on the bed, holding my head, crying and screaming, "Please help me. Somebody, help me!" Not long afterwards, I went into the bathroom and threw up, before crawling back into bed and finally passing out from the pain.

If ever there was a degree of physical pain that made me feel like giving up, it has been during episodes of severe migraine. I have literally felt like dying at times, because I thought I couldn't handle the pain even one more minute.

And yet, here I am.

Thankfully, God designed our bodies not to remember physical pain. I can tell you what happened, and generally how I felt, but I can't re-live the pain itself. Unfortunately, that isn't the case with emotional scars. Those wounds can sometimes take a lifetime to heal, and when they are reopened, they can hurt just as much as when the initial pain was inflicted.

When I am hurting physically, I may feel like dying, but when the pain goes away, life looks sunny again. It's easy to then see that "this too shall pass" because it really does. Even with chronic illness, there are moments when the pain dissipates enough to find moments of joy. It's important to look for those, because it helps you endure the rest of the time. Looking at my photos from New York, no one would ever know I had spent half the trip in pain, because the rest of the time, I was all smiles! Yes, there were a few of those pics where I was in "fake it 'til you make it" mode, but for the most part, I managed to salvage some really great moments that far outweighed the nightmare migraines I endured.

We have to be careful with emotional pain, though. I don't know who coined the phrase "Sticks and stones will break my bones, but words will never hurt me," because that's just not true. Harsh words, coming from friends or family members, cut deep. We begin to believe what we hear, and wonder if we really are OK...or not. 

Our mistakes can hurt too. When I look back at my teen years and even into my 20's, it's easy to beat myself up over the many poor decisions I made. I may have changed my ways, but the consequences of those decisions didn't just disappear. There are so many times I have wished I could go back and have a "redo."

And sexual violence and abuse...well, that pain cut to the very core of who I was, and it took years of therapy for the flashbacks and nightmares to stop. I can still remember hands holding me down, then the hand placed over my mouth as I cried out in pain, ordered to "shut up!" because someone might hear; and the sting of my tears when it hit me that I was not a virgin anymore.

Night after night, for many years, I cried out to the Lord, "Why God, why?" I certainly could have come up with 13 good reasons to take my life. And yet, I did not. Growing up in the church, I was told suicide was the one unforgivable sin, because how can you confess killing yourself when you are already dead? I'm not sure that God in His infinite mercy wouldn't have forgiven me, but I do know that was not the only thing that kept me alive. 

The words spoken by God in Isaiah 41:10 are powerful. Don’t be afraid, because I am your God. I will make you strong and will help you. I will support you with my right hand that saves you. Every moment of every day in which I have been in either physical or emotional pain, I have had to remember them. God will help me. God is with me. God will save me.

Despite my health situation, despite my poor choices, despite whatever bad things I have believed about myself, and despite the physical and psychological trauma I have experienced, I have held on to those promises: God will help me. God is with me. God will save me.

And you know what? He has.

Jeremiah 29:11 says that God has a plan for us...a good one! The only way to find out about that plan, though, is to live it out. We have to wade through the mud, fight the battles, and allow God to cut away entanglements that hold us back, in order to reach the promised land He has for us. Sometimes it isn't easy. Sometimes, we aren't sure we are going to make it, or whether it's worth it. But it is. It always is. How do we know? Because He says so.

Back in my younger days, surrounded by darkness and not seeing much light ahead of me, I could have found 13 reasons why my life wasn't worth living. Today, looking back in hindsight, I can find 13 reasons - and more - that God wanted me to hold on for. 

If I were able to talk to my teenage self and tell her the 13 reasons why not to take her own life, here are what they would be:

1. God has a plan for you - a good one - and you will get to hold His hand through your entire journey, finding more comfort and joy, peace and love than you ever thought possible.

2. You may not realize it, but you're not alone. A lot of people look perfect on the outside, but their life is messy too. Even Jesus suffered through gossip, betrayal, pain and loss. He gets what you're going through.

3. You think if you were only "good enough" those people will like you. The truth is, some people won't like you even if you're the most wonderful person in the world. That's more about them than it is about you.

4. You think your pain is never going to end, but I promise it will. One day, you'll graduate. One day, you'll move (or they will). One day, you'll meet people who like you just the way you are. One day, your broken heart will heal. One day, you won't just notice the rain. You'll see the sunshine and notice the flowers too.

5. Your parents aren't perfect. Neither are you. Do the best you can to deal with them, the same way they are doing the best they can to deal with you. That whole parenting thing is as hard for them as it feels to you.

6. Everyone makes mistakes. Lots of them. Learn from them, but forgive yourself too. God loves you, warts and all, and the Bible is full of people who have screwed up but God used them anyway! Keep putting one foot in front of the other and you will eventually get where you need to be.

7. You may feel powerless, but God is all powerful. Give your biggest problems to Him, do the next right thing, and leave the results to Him.

8. That rape or physical abuse? No, it's not your fault and don't let anyone say otherwise. You didn't ask for it and you didn't deserve it. Stop blaming yourself and get some help instead.

9. Just because "everybody's doing it" doesn't mean you need to. There are many miserable people in the world, doing things they know aren't right. Don't become one, just to fit in. Live your values and you'll keep your confidence.

10. There isn't any problem that an alcoholic drink or drug (or act of self-harm) won't make worse. And even if you feel better momentarily, there will be a hefty price to pay the next day or even further down the road. Reach out for help instead.

11. When God feels far away, remember who's moved. He is always there for you. Don't forget to reach up.

12. Don't be a victim of "stinking thinking." Fill your mind with positive thoughts and surround yourself with positive people. You have to look beyond your problems to find the solutions.

13. Life is like a rose: it is full of petals and thorns. Yes, sometimes it's painful, but there's an awful lot of beauty there too. Count your blessings every day. A little gratitude can go a long way.

Had I not chosen to live through the pain of my early years, I hate to think what I would have missed later on: quiet sunrises, gorgeous sunsets, warm embraces, wildflowers in the spring, happy smiles and travel across the miles. Every day, there is something new to look forward to.

The world is tough and pain is real. Just don't forget whose you are, and who's got your back! God will help you. God is with you. God will save you...every time.

Peace, joy and love to you today,

Linda

13 Reasons Why {Not} originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on Facebook and Twitter

Many of Spring Sight's posts can also be found each week on Crystal Storms' Thoughtful Thursday,  Kelly Balarie's #RaRaLinkUp, Holly Barrett's Testimony Tuesday, Holley Gerth's Coffee for Your Heart, and Woman to Woman's Word Filled Wednesday. I also link up often with Jennifer Dukes Lee and Dawn at Journeys in Grace, as well as with Lori Schumaker.


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Monday, February 6, 2017

God is Listening

"But in my distress I cried out to the Lord; yes, I prayed to my God for help.
He heard me from his sanctuary; my cry to him reached his ears." - Psalm 18:6 (NLT)

As I look across this room today, I am sick of being sick. After battling an upper respiratory infection for weeks, with a cough that just won’t go away, on top of a painful shoulder and a sore foot, I am tired of hurting.

This is an unexpected feeling, because before Christmas, I was feeling pretty good. I felt like I was pretty much in remission with my RA, and I began a diet, hoping to get my pre-RA figure back.

Alas, with rheumatoid arthritis – or life in general, I guess - nothing is ever a straight line.

That is where trust comes in. Trust in myself? Ha, I wish. I’ve been down that road before, thinking that if I just try harder or work smarter, it will all work out. Unfortunately, I can’t control every facet of my life, the least of which is my chronic illness.

I don’t like being told I’m not in control. I am a linear thinker, which means I want to know that if I am in control of the input, then I can control the output. That isn’t real life, though, is it? There are so many variables, only a few of which I am really in control of.

I am fortunate to have found a good program, Pack Health, about a year ago, which set me on the path to taking better care of myself. I’ve been able to apply the strategies to my life and as a result, I feel much better overall. I’ve even begun writing blog pieces for them, so that others may benefit from my experience. That said, no program can prevent all the curveballs that autoimmune diseases can throw at us.

For me, the most frustrating aspect of living with RA is the inability to heal. I thought I was never going to recover from my shoulder surgery two years ago. I did, but not without a lot of hard work, some extra time, and only with the help of a DMARD (disease modifying anti-rheumatic drug). I hadn’t needed to be on a DMARD before, but my doctor made it clear I would never fully recover the use of my shoulder without reducing the inflammation in my body. Wow, what a difference!

Yet here I am again, with the other shoulder’s torn rotator cuff…and despite months of physical therapy, it still hurts. And while I was just feeling good about a daily walk through the neighborhood with my husband, along comes a constant pain in the bottom of my foot. In between visits to my physical therapist, my rheumatologist and my primary care physician (for that pesky sinus infection), I might actually make it to the podiatrist. Joy…another new medical experience!

Not to sound like negative Nellie, but sometimes you just have to get real. You know what I mean?

I tell you why I’m sharing all of my frustrations here. It’s so you know that I understand where you’re at. I know exactly how it feels to be fed up. Or maybe we should call it “beat up” because sometimes that’s more like it, isn’t it? The pain is more than just physical; it’s emotional too. I don’t know about you, but there are days I just want to curl up in bed, throw the covers over my head, and quit.

You know what keeps me going, though? It’s that still, small voice that says “I’m not finished yet.”

Yes, I believe it when God says in Jeremiah 29:11 that He has a plan for my life and it’s a good one. I believe Him when He says He doesn’t start something He isn’t planning to finish. And somehow, I don’t think He’s done with me yet.

There are enough times in the Bible that God says “Do not fear…I will go with you” to let me know that even right now, while I’m ready to give up, He is with me, cheering me on. Sometimes, it’s seeing a news clip that makes me realize I’m really not so bad off after all, compared with them, anyway. At other times, it’s my daughter, who makes me smile and yet also makes me see how much she needs me. And when I look back over my life, I can see where God really has been there during the hard times, carrying me until I could get back on my feet and walk again.

I know that when I close my eyes and pray, my prayers are heard. He hears my cries. I know, because at some point, the pain stops – even if just for a few moments – and I can feel His peace and His presence.

Whatever you are struggling with today, whether it is chronic illness or something else, you can be confident in a God who loves you and cares for you. He hears your cries too and says, through the words of Jesus, “Come to me, lay down your burdens, and I will give you rest.”

Peace, love and joy to you today.

Linda

God is Listening originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on Facebook and Twitter

Many of Spring Sight's posts can also be found each week on Crystal Storms' Thoughtful Thursday,  Kelly Balarie's #RaRaLinkUp, Holly Barrett's Testimony Tuesday, Holley Gerth's Coffee for Your Heart, and Woman to Woman's Word Filled Wednesday. I also link up often with Jennifer Dukes Lee and Dawn at Journeys in Grace, as well as with Lori Schumaker.


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Friday, September 30, 2016

#RABlog Week Day 5: Great Blog Posts I Have Read This Week

Just One Voice,
Singing in the darkness,
All it takes is One Voice,
Singing so they hear what's on your mind,
And when you look around you'll find
There's more than
One Voice
 - Barry Manilow - 

When I was 16 years old, I was a huge (or in the words of Donald Trump, lol, YUGE!) Barry Manilow fan. His songs somehow had the power to make me smile and cry at the same time. There was so much truth and so much raw emotion in them, and a few, like Copacabana, even had a little mystery and humor mixed in.

In the same way, #RABlog Week is one of my favorite times of the year because it brings together a whole lot of different stories and perspectives from rheumatoid arthritis (RA) patients from around the world. We smile as we hear a story we relate to. We cry when we read of someone’s pain and struggles that are even more difficult than our own. We get some good advice from others who have been there and done that. We are inspired and encouraged, and occasionally, we even find a little humor. As writers, we begin as just One Voice, but then learn there are a whole lot more of us, and together, we sing a beautiful chorus.

With almost 40 registered bloggers and more than 50 entries (so far), I haven’t had a chance to read all of this year’s blogs, but I can share with you a few I have enjoyed, as well as some collective wisdom I found threaded through all of them.

Tuesday, September 27, 2016

Caring for Yourself ... Wisely

"Use wisdom, and it will take care of you. Love wisdom, and it will keep you safe."
- Proverbs 4:6 (ICB)

Today is Day 2 of #RABlog Week and the topic is “Active vs Reactive Patients – We usually start as naïve and trusting patients, then at some point we realize we must take an active part in our own medical decisions…” 

Some of you may be reading this blog for the first time, as a result of #RA Blog Week, but there are others of you who are regular readers that don’t struggle with rheumatoid arthritis (RA), so I am going to talk today about something relevant to the #RABlog Week topic and to all of us: wisdom.

Perhaps there are a few exceptions out there, but for most of us, wisdom is not something we are born with. Take, in point, the story of ironing my doll clothes. 

I was about 10 years old and living in the tropics, and so wearing a bikini around the house wasn’t that unusual. My favorite doll Crissy, however, wanted to look a little fancier than I did. Alas, her dress was wrinkled. Being the daughter of a fashion queen (not just self-professed … my mother actually became a paid fashion and image consultant later in life), I knew that wearing wrinkled clothes just wouldn’t do. I told my mother, as she was walking out the door, that I would need to use the iron to take care of Crissy’s fashion crisis. 

Being the good mother she was, my mom told me to wait until she got back home. And being the (stubborn, disobedient) child I was, I completely ignored her instruction. Crissy’s dress was wrinkled. I was going to fix it. Period!

Monday, September 26, 2016

#RABlog Week Day 1: A Wedding, a Kayak and a Diagnosis

"RA Does Not Have to Define You" - Linda W. Perkins

Today is Day 1 of #RABlog Week and the topic is "Starting Stories." I've told my story several times here on Spring Sight and I wondered how I might tell it differently this time.

While I would never consider the diagnosis of a chronic, painful and incurable illness like rheumatoid arthritis to be amusing, there comes a point in your life when you have to find a way to laugh at even the worst of circumstances. After all, it's been said that laughter is good medicine for the soul, and I tend to agree.

So for today's post, I have created a title that's a take-off on the old "A Priest, a Rabbi and a Minister" joke. Yes, my starting story could be best described as "A Wedding, a Kayak and a Diagnosis." And fortunately for me, I was reminded by a fellow RA blogger's post that I have already told this story once before, in a multimedia format that's much more interesting than just a written story.

So without further ado, may I present "A Wedding, a Kayak and a Diagnosis" as told by me, and produced by Health Central. Read, listen and enjoy (spoiler alert: it has a good ending)!

My Story: A Wedding, a Kayak and a Diagnosis (link)

Check back here during the week for more RA-related posts, and go to the #RABlog Week topics page to find posts by other RA bloggers!

#RABlog Week Day 1: A Wedding, a Kayak and a Diagnosis originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on FacebookPinterest, and Twitter

Many of Spring Sight's posts can also be found each week on Crystal Storms' #IntentionalTuesday,  Kelly Balarie's #RaRaLinkUp, Holly Barrett's Testimony Tuesday, Arabah Joy's Grace & Truth, Holley Gerth's Coffee for Your Heart, and Woman to Woman's Word Filled Wednesday. This week, I am also linking up with Jennifer Dukes Lee and Dawn at Journeys in Grace, as well as with Lori Schumaker.

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Monday, July 25, 2016

Releasing the Ghosts of the Past

“No, dear brothers and sisters, I have not achieved it, but I focus on this one thing: Forgetting the past and looking forward to what lies ahead.” Philippians 3:13 (NLT)

I hadn’t looked at my high school yearbooks in years. There was no need. That was then. This is now. I had moved on. Or so I thought.

As I reached up into the living room cabinet and took one down, I could feel the memories flooding back. Opening the cover, I could hear the spine crackling, as if the book was an ancient artifact, fragile from years of storage.

I felt a sense of dread come over me. Sure, there were some good times back then, but buried in that book were memories that haunted me right down to the core of my soul. These were not just a few bad moments. These were the kinds of ghosts that I had spent years trying to exorcise from my mind, the kinds that would keep me locked up in a prison of guilt and shame, remorse and regret.

Tuesday, July 19, 2016

What Doesn't Kill Me Makes Me Stronger

“In this world you will have trouble. But take heart! I have overcome the world.” – John 16:33

I looked around me at the women in the pool, watching as their gray-haired heads bobbed up and down to the beat of the loud music. Their wrinkled, sagging skin told me they had at least 10 or 20 years on me, and yet I was the one struggling to keep up.

When we finally got to the end of class, I commented to one lady, “Wow, this water aerobics isn’t for sissies, is it?” She just shrugged and smiled. She was there every day. To her, it was no biggie. To me, this was more than a struggle. It was a matter of life and death.

Tuesday, May 31, 2016

Finding Hidden Treasures (aka Arthritis in your Armpits!)

“I will give you hidden treasures, riches stored in secret places, so that you may know that I am the Lord, the God of Israel, who summons you by name.” – Isaiah 45:3

A few years ago, while on a camping trip with my daughter, I learned a new game called geocaching. Similar to a scavenger hunt, you use a global positioning system (GPS) to find a hidden “cache” of treasure. The difference between the two games, however, is that with geocaching, you don’t know exactly what you’re looking for. All you know is that it will be in a container of some kind, and that it will be located at certain coordinates on the GPS. The treasure itself is a surprise.

I have noticed, in my journey with God, that life can sometimes be like geocaching. We are looking for something – our purpose, a new direction, or perhaps a specific answer to prayer – but we aren’t sure exactly what we will find.

Tuesday, March 29, 2016

Praying Through the Fear

“Cast all your anxieties upon him, for he cares about you.” – I Peter 5:7 (RSV) 

It was a first for me. I was not one of those people with “dentist phobia.” Growing up, our family dentist was also our family friend. I had my teeth filled with only a minimal amount of anesthetic. I was awake for oral surgery and watched the procedure with fascination. No, going to the dentist never scared me. Until yesterday.

A bad experience and fear of the unknown can be a powerful cocktail, and I was drinking it up. I felt woozy from all of the thoughts swimming around my head. My mind wandered back to the last major dental work I had, a disastrous event that resulted in gum ulcers, an infection and a complete redo on the crown itself. What if I have to go through another awful experience? With TWO teeth needing crowns today, will it be even worse?

I had also been reading about dental work and rheumatoid arthritis (RA), a diagnosis I didn’t have the last time I had a crown, and I was seriously questioning my decision to have the procedure without talking to my doctor first. I’m already experiencing an RA flare – should I prepare for even more pain? I didn’t think about being on an immune suppressant drug. Should I have asked for antibiotics?

With my anxiety increasing as the appointment time grew closer, I wondered if my blood pressure would shoot up and knew that heart palpitations would follow if I didn’t calm down.

I groaned when my name was called and reluctantly sat down in the chair, hastily expressing my concerns to the dental assistant. As she left the room to go check the X-rays and get the dentist, I did something I’ve never done before in a dental office. I folded my hands, bowed my head, and prayed.

Lord, help me trust. Help me trust in the dentist and help me trust in You. Calm my heart, Lord, and give me peace. Take my fear, Lord. Give me the confidence I need to know it will be OK. Guide the dentist and help me feel Your love. Please, Lord, just help me trust.

Gone were the palpitations. Gone was the anxiety. I closed my eyes and pictured Jesus in my mind, His kind eyes and loving smile beckoning me to trust. It will be OK.

An hour later, with the left side of my mouth numb and two temporary crowns on my lower back molars, I was on my way home.

I reflected on that hour in the dentist’s chair. With one invisible touch from the Master’s hand, my fear had simply melted away. With my focus on Him, all I could feel was love and peace and joy. The sound of the drill was just background noise, the occasional twinge just a minor interruption. Before I knew it, the procedure was over.

The dentist had said at the end, “You were great!” But I knew different. I was not great. No, not at all. If he had seen me beforehand, he would have known that. God was great. Jesus carried me through.

How many times in my life has Jesus had to carry me through circumstances I couldn’t manage on my own? Situations that had me confused and bewildered, in fear and doubt and uncertainty? So many, I can’t count. But here’s what I’ve realized: While Jesus has carried me through many difficult situations, He is often carrying me kicking and screaming!

So many times, I have worked myself up into such a tizzy of emotion that I may be saying “God help me!” under my breath, but I am still fighting my circumstances with every ounce of energy I have. Jesus is trying to rescue me out of the burning building, while I am still trying to put out the fire myself!

That hour at the dentist showed me that when I really and truly let go and let God, my circumstances immediately get easier. I still had to have the two crowns put on my teeth. The dental work didn’t just go away. But it proved that the words of one of my most beloved hymns are true:

Turn your eyes upon Jesus,
Look full in His wonderful face,
And the things of earth will grow strangely dim,
In the light of His glory and grace.

Every day I have a choice. Will I keep my eyes on my circumstances and allow fear to rule my life, or will I keep my focus on Jesus and allow peace to reign in my heart?

In Isaiah 41:10, God implores us to trust. He is with us. We do not need to be worried or anxious about anything. “Do not fear, for I am with you; do not anxiously look about you, for I am your God.”
What we need is not a change of circumstance. What we need most is communion with Him.
And in case we still doubt, He assures us, “I will strengthen you, surely I will help you, surely I will uphold you with My righteous right hand.”

Regardless of our past experiences, our current situation or our fear of the future unknown, God wants us to know He is there. He will not let us go. He is worthy of our trust.

Do not worry about anything; instead PRAY about everything. Tell God your needs, and don’t forget to thank Him for His answers. (Philippians 4:6)

Praying Through the Fear originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on FacebookPinterest, and Twitter

Many of Spring Sight's posts can also be found each week on Crystal Storms' #IntentionalTuesday,  Kelly Balarie's #RaRaLinkUp, Holly Barrett's Testimony Tuesday, Arabah Joy's Grace & Truth, Holley Gerth's Coffee for Your Heart,  and Woman to Woman's Word Filled Wednesday. This week, I am also linking up with Jennifer Dukes Lee and Dawn at Journeys in Grace.


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Friday, February 19, 2016

When Tears Begin to Flow

"Jesus wept." - John 11:35

Mothers know what tears are for.

“Whaaaaaa!!!”

That very first cry, in the moments just after a child has been born, says it all.

He’s been pushed out of his comfort zone, out from where it was warm and safe, into an environment he doesn’t recognize. As his lungs fill with air for the very first time, his eyes open to a bright new world, and his body shivers from the cold he’s never felt before. He has struggled to get here, and yet now … now, he’s not sure why.

“Whaaaaaa!!!”

His cry rings out to signal his distress. His fear. His confusion.

Moments later, he finds loving arms to hold him.

“There, there, it’s OK.” 

The words sound soothing. The arms feel secure.

It is OK. Love is here.

Mothers know that tears don’t always mean sadness.

Sometimes they’re from joy.

Sometimes they’re from pain.

Sometimes, they are from just being so tired, so overwhelmed, that you just feel you can’t go on. Or maybe you can go on, but you just need to rest. You need to vent. You need to grieve. Or you just need to breathe…

Tears say “I need.”

From the moment we are born, we need.

We need food. We need clothing and shelter. We need comfort and care when we are hurt.

Above all, we need love.

I was reading another blogger’s post today, in which she shared about the pain and medical procedures she was having to endure as a result of her rheumatoid arthritis (RA) and a rare bone disease. She wrote about an encounter she had with a nurse who asked how she was doing.
"The tears had begun to flow and we just sat there in silence. She understood."
My friend had reached a moment at the hospital where she just couldn’t express what she was feeling in words anymore. She needed to cry. She needed to express the pain, the fear, the grief … all of it. And she needed love and understanding. But there were no words to express all the need that was bottled up inside her. And so, she wept.

As a Christian, it’s easy to talk about “the joy of the Lord” and expect to feel the “peace that passes understanding” even during hard times. And make no mistake, I do my part to try and stay in that joy and peace. I pray. I study my Bible. I meditate on God’s promises. I worship. I fellowship with other believers. All of that helps.

But sometimes…

The tears fall.

A few weeks ago, my mother went into the hospital with pneumonia and within a few days, was put on life support as a last-ditch attempt to save her life.

When they put her on the ventilator, I wept tears filled with sorrow.

When they told me they had removed the breathing tube and she was able to breathe on her own again, I wept tears of joy.

Next week, she will undergo major surgery for a different problem. It is high risk because of her underlying medical conditions.  I know that and so does she. When I wish her well, as they take her off to the operating room, I already know that - no matter how strong my faith - all the love I feel for my mother, the joyful memories of the happy times we have spent together, the hopes and dreams for all I still want to share with her, and the fear of losing her, will well up inside me ... Once again, I will weep.

I am not ashamed of my tears.

Even Jesus wept. He wept when He saw his friend Lazarus, dead. He wept when his other friend, Judas, betrayed Him. He wept when He saw what was to come on the cross. It didn’t matter that He knew the ultimate ending, His glorious resurrection.
When life – and the prospect of death – was overwhelming, Jesus wept. 
Jesus isn’t a weakling. He is strong enough to conquer temptation, sin and death! And yet, here on earth, dressed in mortal flesh, even Jesus needed a good cry sometimes.

When His flesh cried out, “I hurt!” Jesus needed to let out His human emotions and pain, in order to let in the love of the Father and the power of the Holy Spirit.

Jesus’ tears meant the same as ours. His tears said, “I need…” 

Just as Jesus needed the love of the Father and the power of the Holy Spirit to give Him the strength to overcome what He faced - to take him from suffering and death to life again – so we need God to carry us through our trials and our tears.

On any given day, my tears may mean many things. When I’ve been pushed out of my comfort zone, in unfamiliar territory, and I’m scared. I’m confused. I’m overjoyed with happiness. I’m overcome with grief. I’m hungry, angry, lonely or tired. I’m stressed and overwhelmed. When I need comfort, I need shelter, I need rest.

In the end, when I let it all out – when the tears fall from my eyes with an outpouring of unspoken emotion – I will let in the Holy Spirit and find strength again. Whatever I’m going through won’t last forever. This too shall pass. I will fall into God’s loving arms and feel His warm embrace, as He helps me to my feet again.

There, there, it’s OK. Love is here.

When Tears Begin to Flow originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on FacebookPinterest, and Twitter

Many of Spring Sight's posts can also be found each week on Crystal Storms' #IntentionalTuesday,  Kelly Balarie's #RaRaLinkUp, Holly Barrett's Testimony Tuesday, Arabah Joy's Grace & Truth, Holley Gerth's Coffee for Your Heart,  and Woman to Woman's Word Filled Wednesday. This week, I am also linking up with Jennifer Dukes Lee


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Tuesday, February 2, 2016

How Bad Is It Really? Perception vs Realty

The Real RD Fact #5: Rheumatoid disease is often an invisible illness.


This is the first article on rheumatoid disease (RD/RA/rheumatoid arthritis) written for Rheumatoid Awareness Day. It is centered on RD Fact #5: Rheumatoid disease is often an invisible illness.

The words from the company CEO cut into me like a knife. “I’m sorry, but the truth is that perception is reality,” he said.

It wasn’t the first time I had heard that, and it wasn’t the last. But it didn’t hurt any less. The truth didn’t matter. I was being judged by outward appearances, not by what was really going on. And even a valid explanation wasn’t going to do. To him, perception was all that mattered. Everything else – my feelings, or even the facts – was irrelevant.

If you’ve ever been misjudged, you know how much it hurts. It hurts when you’re misjudged by strangers, and it is even more painful when it is by family or friends. “Don’t they know me better than that?” you find yourself saying. And yet, seemingly, they don’t.

Unfortunately, being judged or misjudged is a frequent occurrence in the life of those with rheumatoid disease. It comes with the territory of having an “invisible illness,” one with few outward symptoms.

I find myself battling the “perception vs reality” war often. On-the-water selfies have become a tradition for me and my kayaking husband, as they serve to document our paddling travels. Likewise, my tween daughter and I love to play “silly face” with the camera, frequently posting our antics on social media for our friends to see and to preserve our fun memories when they pop up later in our Facebook feeds.

The only problem with this is that with every picture of fun that is posted, the perception becomes that I’m never suffering with my rheumatoid disease. But why would I post all about the pain? The last thing I want to be is a public whiner, and I really do try and keep a positive outlook. Even my sunny posts designed to encourage others often do double duty, encouraging me when I need a lift.

Then there is the “fake it till you make it” scenario. That was me this morning. Dead tired, with a knee that had throbbed all day yesterday, I dressed up in business attire for a meeting. I was greeted with “Oh, you’re looking great!” by several people. I smiled, thanked them, and tried my best to stay focused on the issue at hand, when inside I was wishing I had been able to rest at home a little longer and wear my comfortable sweats and tennies.

*Sigh* Perception vs reality at work again. I knew that my appearance would make an impression, and I couldn’t afford to be judged a slob. Despite how I felt when I woke up this morning, or how I feel any other day, I am determined not to give into my disease. So I suit up and show up. Day in, day out.

Of course, the issue with keeping your pain from others on a regular basis is that there will in fact be times you can’t fake it and you can’t make it. When you’re too tired to work and you have to take a nap. When your feet hurt too bad to stand and do the dishes. When you have to wear the comfy (frumpy) clothes because your hands can’t manage buttons and zippers. When you (literally) can’t move off the couch or kneel at your child’s bedside to tell them that story you promised.

It is in those honest moments - when we are too overcome with pain or fatigue - that we are at our most vulnerable. To those around us, we may seem lazy. Slobby. Slouchy. Pathetic even. Because we were “just fine yesterday” we are perceived as whiners today. The reality, however, could not be further from the truth.

Ask anyone with rheumatoid disease, and we want to do more. We grieve the loss of our time with others. We guilt ourselves too, over not being all that we would like to be as employees, as parents, as spouses, as friends, even as adult children who would like to do more for our aging parents. We want to be more too. More active. More fun. More healthy. More … of all we used to be, before our autoimmune disease lay claim to our lives.

The truth of an invisible illness like rheumatoid arthritis is that perception clearly does not equal reality. The question is what will you do about it? Having an invisible illness gives me a choice of whether to stay steeped in my own pain, or whether to live as a fraud.  For me, it is about balance. I will find joy where I can, celebrate the tiny moments of pleasure, endure the pain, and be honest about who I am. RD affects me every day. There is no escaping that. But it does not define me. And for that, I am grateful.

If you have an invisible illness like rheumatoid disease, how do you balance perception versus reality? If you aren’t chronically ill, how do you perceive those who are? How much of a challenge is it to accept that their reality may be different – and more painful - than the positive image they are projecting?

How Bad Is It Really? Perception vs Reality originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on FacebookPinterest, and Twitter

Many of Spring Sight's posts can also be found each week on Grace Esedeke's EncourageMe MondayCrystal Storms' #IntentionalTuesday,  Kelly Balarie's #RaRaLinkUp, Holly Barrett's Testimony Tuesday, Arabah Joy's Grace & Truth, Holley Gerth's Coffee for Your Heart,  and Woman to Woman's Word Filled Wednesday.


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Friday, October 30, 2015

Managing Chronic Illness and What My Doctor Misses

“The whole is greater than the sum of its parts.” – Aristotle

I may be a card-carrying AARP member (recently qualified, thank you!) but since “50 is the new 40,” I like to think of myself as pretty young, with many good years ahead of me. Unfortunately, my body doesn’t always agree with me. And when I’m running back and forth to doctor’s offices, with this and that wrong with me, I remind myself more of a retired elderly person than a working mother of an 11-year-old!

The problem with managing multiple chronic illnesses is that they often are running on parallel tracks. I think sometimes I should hold a conference so that my rheumatologist can confer with my dermatologist, who can then consult with my neurologist, and so forth and so on…oh yes, and so my primary care doctor would actually have a clue as to the total picture.

Those of you in my shoes know that’s not the way the world works, though, is it? We shuttle back and forth from our general practitioner to our various specialists and hope that somehow we can keep it all straight: The appointments. The blood tests. The scans. The meds.

Occasionally, the tracks do come together, however, but not always in the best way. The trains on the tracks collide, leaving us in a real mess, trying to figure out how to make things work together.

Such was the case in my life this past week. When, in the midst of several months of chronic migraines, I was given medicine for my chronic cough that made my head – as if it weren’t hurting enough – feel like exploding, every single day. It flared up my rosacea and then began interfering with my thyroid and RA meds too, leaving me as a red-faced, head-pounding, fatigued, joint-aching mess.

Finally, today, I said “ENOUGH!!”

It’s not as if I have all day to deal with this. Did I mention that I work and have an 11-year-old? And that tomorrow is Halloween?

I thought about it. What about all of those well-meaning people who have been offering me supplements and essential oils for my various ailments? What the heck, I thought. I’ll give it a try. I put out a cry to help on my Facebook page and by noon, I had numerous people offering advice. Whereas I had rejected their advice before, today I felt nothing but gratitude.

Take this. Try that. Drink this. Stop drinking that.

Feeling more open to new ideas than I ever had, I decided to adopt a few. Meeting with someone who had been in my shoes was wonderful. She described being on six medications for just one ailment, and how they had adversely affected her, which she finally replaced with an essential oil. Voila! It wasn’t prescribed but it wasn’t “witch doctor” science either. The bottom line is, it worked. I’m open. I’ll try it.

I tried yoga this week too. It’s something I’ve always hated, maybe because I wasn’t good at it, but I had bought a Yoga for Arthritis video awhile back and so I thought perhaps this time would be different. It was. I was open. I tried it. And it felt great!

I’m even trying things that feel really hard. Like giving up my Diet Coke. And cutting back my coffee. Ouch! These two beverages are something I really enjoy! But do I enjoy them enough to be miserable, if they are in fact the cause of my chronic cough and headaches. No, today, I don’t think so. So once again. I’m open. I’ll try it. And we’ll see what happens.

What I’ve realized today is how easy it is to get lost in the pharmaceutical jungle. There are some meds I must take. They are the foundation for keeping my more serious illnesses under control. But like so much in life, they are just a small part of the bigger picture.

I am more than a patient. I am a whole person!

As a whole person, I have to remember that my recovery has to be holistic as well. I have to apply what Aristotle said, that “the whole is greater than the sum of its parts.” If one part of my recovery is missing, then my healing won’t be complete.

I need more than just medicine. I need healthy food. Regular exercise. Social engagement. Spiritual connection. I need the whole package.

I write a lot on Spring Sight about how to have a spiritual connection with our Heavenly Father. Do you have that connection? Do you realize how important it is as part of your recovery? Perhaps you already do, but like me, there are other parts of your self-care that have been missing. Whatever it is, be gentle with yourself. You can only do so much. But remember, just a little bit of effort in each area of your life can make a big difference when you put it all together.

I’ll keep you posted on how my journey to wholeness is going. How are you doing on yours?

Managing Chronic Illness and What My Doctor Misses originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on FacebookPinterest, and Twitter

Many of Spring Sight's posts can also be found each week on Crystal Storms' #IntentionalTuesday,  Kelly Balarie's #RaRaLinkUp,, Holly Barrett's Testimony Tuesday, Arabah Joy's Grace & Truth and Woman to Woman's Word Filled Wednesday.

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Wednesday, October 14, 2015

Four Truths for When You Reach the End of Your Rope

“Love bears all things, believes all things, hopes all things, endures all things.”
I Corinthians 13:7 (ESV)

Calgon, take me away! I thought to myself. I am not sure if I can handle one more single thing!

It had been one of those days. And weeks. And months. You know the kind. The period of time when the stress of life piles on and on and on, until one moment, you just snap and exclaim, “I am truly at the end of my rope!”

Sometimes, that moment rushes in quickly. You wake up late, break the heel on your favorite pair of shoes as you’re racing out the door, spill your coffee in the car, and try not to yell or show your embarrassment as your child hugs your leg tighter and tighter at the daycare drop-off. As you pull away, your boss is calling on your cell phone, while in the rear view mirror you can still see the tears running down your little one’s face, while screaming “Mooommmyyyy!!!” Within just a few hours of waking up, you’re already tearing your hair out, dreaming of making a speedy escape from it all. Perhaps Bermuda would be nice this time of year, Triangle and all.

While days like that can be over-the-top frustrating, most of the time I reach the end of my rope gradually. It’s like playing the tower-of-blocks game Jenga. One little piece at a time is moved – taken away or put on the stack - until finally, it becomes too unstable and everything comes crashing down with a bang. Like it did the other day.. When, after a growing sense of pain and pressure from a variety of circumstances, I totaled my car. Yep, that’s right. Totaled it.

I had felt it coming on for a while. My body has a pretty good warning system. Joint pain. Fatigue. Daily migraines. A quick temper. I should have known it was time to take a ”mental health day,” and yet, while I can call in sick at work, I have yet to figure out how to do that at home. Heck, even this article is coming later than I had planned, because just as I was writing it, my daughter came in and announced she had lice! There went the next six hours. Ugh.

Sometimes, it all just gets to be too much.

I’m lucky to say no one was injured in my accident…oh, and $300 (and loads of laundry) later, my daughter no longer has lice. But regardless of the outcome, my nerves feel a little frazzled, to say the least. It’s that feeling of being overwhelmed, drowning in a giant ocean of obstacles and challenges, and trying to just keep my head above water.

I may say to myself, “Just breathe…it will all be OK,” but actually doing it is another thing all together.

Whether we’re drowning in the everyday details or we’ve just been whacked upside the head with a big traumatic event, God encourages us in His Word to let go of our own rope, when we get to the end of it … and instead, reach up to His. And in doing that, we can hold on to four key truths, based upon 1 Corinthians 13:7.
  1. God is the support system you can’t live without. When God says “love bears all things” that is a description of what He wants to be for us: a loving Father who supports us when we are weak. When we can’t carry our load of life struggles, He is there to bear the weight for us.
  2. God believes in you, even when you don’t believe in yourself. God says He is love, and love believes in all things … including you! No matter how much you may think you can’t do this, or perhaps you’re still beating yourself up for the mistakes you’ve made, God sees the very best in you and knows you can do this!
  3. God wants you to keep living in hope. When we trust only in the chaos and confusion of life circumstances, it’s hard to remain hopeful. God wants us to trust in Him, the author of hope. The hope we have in Him is not circumstantial, but rather is steadfast during difficult times, because we know that in His bigger plan that we can’t see, He works all things for good.
  4. God is your strength for the long haul. Life may feel at times like a series of sprints, where you’re running as hard and as fast as you possibly can, but the reality is that it’s a marathon. And as any marathon runner will tell you, just finishing the race is an accomplishment in itself. It takes training, patience, perseverance, and commitment to get to the finish line, along with a solid supply of high energy nutrition and life-sustaining water. Without a regular supply of Daily Bread (Scripture) and Living Water (the Holy Spirit) that Jesus offers, we can’t make it through this life. We need His strength for the endurance we need.
Today, as I look back over the circumstances that led me to the “end of my rope,” I see God in the midst of it all. He was there as I grieved over the death of a friend, while reconnecting with another who sat next to me at the service. He was there in the comfort and grace I received from my husband after my accident, and the gratitude I felt that my precious child was unhurt. And yes, He was even there in the middle of my lice crisis, which led me across town and into the path of someone who needed help in that very moment. As I see Him there, ever present, I can relax. Life can get crazy sometimes, but God’s got it all under control. My part is to trust. Let go of my rope. And hold onto His.

Have you reached the end of your rope? If your life is filled with frustration and pain, let go of your own rope, and reach up and hold onto the strong rope that your Heavenly Father has sent down to save you. Then remember, when things get a little bumpy, just keep holding on! 

Four Truths for When You Reach the End of Your Rope originally appeared on Spring Sight blog, by Linda W. Perkins. Click here for more posts. Get even more encouragement by following me on FacebookPinterest, and Twitter

Many of Spring Sight's posts can also be found each week on Crystal Storms' #IntentionalTuesday,  Kelly Balarie's #RaRaLinkUp,, Holly Barrett's Testimony Tuesday, Arabah Joy's Grace & Truth and Woman to Woman's Word Filled Wednesday.


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Monday, September 28, 2015

The Gift of Suffering


“There’s far more to this life than trusting in Christ. There’s also suffering for him. And the suffering is as much a gift as the trusting.” – Philippians 1:29 (MSG)

You can’t write a blog for people with chronic illnesses without talking about suffering. For some, it’s an everyday thing. For others, like me, it’s every now and then. Most days, I hardly think about having rheumatoid arthritis (RA). Life is good, now that I have a good treatment plan, and I’m relatively pain-free. But it’s not difficult to remember a time when that wasn’t the case.

When my disease was in full-swing, there wasn’t a day that went by when I didn’t wake up hurting. I couldn’t figure out why I was so fatigued all the time (was I lazy?) and why my fingers were too swollen to remove my wedding ring (was I getting fat?). And why did my feet hurt every time I stood up? Filled with self-doubt and unanswered questions (was I just getting old?), my life was beginning to feel like a train wreck.

I was suffering … and my family, feeling a little abandoned and frustrated with my “excuses” for not being able to do more, was suffering right alongside me.

I’ll tell you the truth. I’m glad those days are over and I have no desire to revisit them. Suffering is no fun. For anyone.

You can imagine my surprise, then, when I opened my Bible the other day and ran across this verse: “And the suffering is as much a gift as the trusting.”

Say whaaat??

Clearly, Paul, the writer of Philippians must have been mistaken. How can anyone think of suffering as a gift? Surely, suffering is not God’s will for us, right? Wrong. Maybe suffering is our own fault, and it will go away as soon as we turn back to God. Nope. Oh, OK, then perhaps God only allows us to suffer temporarily, so He can then show His healing power. Well, sometimes yes, sometimes no.

The Bible says that suffering, not just the release from it, is a gift from God.

How in the world could this be true? I dug deeper. What I found was a God who cares deeply about our suffering (Exodus 3:7) and hears our cries for help. And while sometimes He does rescue us, He more often delivers us in our suffering and speaks to us in our affliction (Job 36:15).

His purpose for allowing suffering is not to harm us, but to draw us closer to Him.

In good times, we are often too busy for God. But when we are hurting, we turn to Him. We mature in our faith, take joy and comfort in His presence, and find strength through Him that we can then share with others. In the midst of pain, we find His peace.

Are you suffering today? Accept this gift. May you hear your Father’s voice of love and comfort, and experience His presence and peace. Cry out to Him. He is listening. What you are going through, He may allow, but He will never leave you.

An excerpt from The Gift of Suffering by Linda W. Perkins originally appeared on Purposeful FaithGet even more encouragement on Spring Sight and by following me on FacebookPinterest, and Twitter.


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Read an excerpt of this article, along with others, on:

purposefulfaith.com

I am also linking up this week with: